Aims : to present the ERN-LUNG Network and highlight some of its assets achieved during the past years through funding and support by the European Commission and the ERS; to learn from participants about their expectations and needs to better tailor initiative offerings and to offer a better support; to present the following take home messages: 1) There is always someone who knows more about this rare disease than myself; 2) ERN-LUNG is the place where to find and get in contact with this Expert across all of Europe.