Wednesday special session
ERN-LUNG: Initiatives of the rare diseases network
Clinical
Aims : to present the ERN-LUNG Network and highlight some of its achievement over the past years through funding by the European Commission and support from ERS; to engage with participants on building the future of the network and the engagement to extend connection with Eastern European Countries; to present ERN-Lung strategies for the management of undiagnosed patients and for the development of Clinical Trial Networks;
09:30
Introduction
M. Humbert(Le Kremlin-Bicêtre, France)
COI
1
5598
09:45
Undiagnozed Patients: what can ERN-LUNG do about it
L. Gietz(Köln, Germany)
COI
-
Description
2
5599
10:00
Undiagnozed Patients: what can ERN-LUNG do about it
M. Bolz-Johnson(Cologne, Germany)
COI
A. Cembrero Bonet(Barcelona, Spain)
COI
-
Description
3
5600
10:15
Undiagnozed Patients: what can ERN-LUNG do about it
U. Unterberger(, Austria)
COI
-
Description
4
5601
10:30
Undiagnozed Patients: patient's perspective
F. Willersinn(Bruxelles, Belgium)
COI
5
5602
10:45
How to set up a Clinical Trial Network
I. Fajac(Paris, France)
COI
M. Delcroix(Leuven, Belgium)
COI
-
Description
6
5603
11:00
ERN-LUNG goes East : How to expand to new territories
G. Meszaros(Vac, Hungary)
COI
F. Bonella(Essen, Germany)
COI
-
Description
7
5604
11:15
Discussion and Q&A
8
5605
. . .